“I was diagnosed with a genetic disease Spinal Muscular Atrophy Type 2 when I was six months old. This rare disease affected my mobility. I had to be home tutored as I couldn’t travel to school or sit in normal classrooms. I dreamt of becoming a social activist and a writer. When I grew older, my muscles began to contract and gradually I lost the flexibility of my fingers, which withered my dreams before blooming. In every stage of physical growth, I experienced the gradual impairment of muscular strength.
Now at 34 years old. My limbs were paralysed. I can only voluntarily use my eyes and tongue. Paralysed limbs challenged me in studies. I couldn’t write on my own. My parents were unaware of the option of a scriber. So my schooling came to an end. But my parents encouraged me to read and acquire knowledge. They took me and my sister (who also had the same genetic disease) to different places and gave us an opportunity to learn new things.
My life continued like that for several years in the same tone. While returning from one of those trips, we met with an accident and lost my dear sister and my beloved father who were my inspirations. That was a turning point in my life. It took years for me to recover physically and mentally from the pain. That huge loss made me think of others who were suffering from similar muscular disorders and their families. Thus I became the part of a NGO named MIND (Mobility in Dystrophy) which is a coalition of muscular dystrophy and spinal muscular atrophy patients.
Now I am the vice chairman of MIND. We work for the upliftment and advocacy of Persons with Disability (PwD).With our tireless effort we managed to provide wheelchairs and other personal assistance to them.
I’m also a mentor in Prajaahita foundation. Prajaahita foundation is an organisation working for compassionate and enlightened citizens. I work for inclusion of persons with disabilities in education and environment. I have conducted an Inclusive environment day campaign Athijeevana and Spinal Muscular Dystrophy awareness which got good support from all corners of Kerala.
I am a motivation speaker, disability rights activist, social blogger and a good traveller. I conduct motivation speeches in schools and colleges all over Kerala. I also use every opportunity to advocate for the need for an accessible environment. Considering my socially relevant activities
and achievements, the Kerala State Youth Commission had honoured me with the State Youth Icon Award of 2018 for social service. I was the Winner of Karunya award 2017-2018 received from Ministry of Kerala.Aliyar Charitable Trust, Trivandrum has honoured me for my activities.I was selected as the Brand ambassador of Person with Disability for creating awareness among the disabled people regarding the importance of Right to Vote by the Collector of Kollam District in connection with the election campaign. I won the Sabal shining star award 2020-2021 in outstanding vision catergory from TATA group. I also Presented a paper titled “Oridam: Love, Hope, Care” in the international youth submit on “Towarads a Knowledge Society”. l was also the Coordinator of the Virtual Campaingn – Samasamam which was the Indian Sign Language campaign. I had also coordinated Campaingn of Love, Hope and Care, the SMA awareness campaign which was conducted through social media in which about 30 lakhs of people took part. Athijeevanam was a campaign which connects nature and persons with disability was also carried out with my coordination. I consider my parents role models. They devoted their lives for
me and did their best for the fulfilment of my dreams. My mother is my source of strength now.
We are trying to get as many donations as possible for our rehabilitation centre where people from all over the world can make use of. If everyone of us joins hands to make a difference, we would create a beautiful ripple in the lives of the people.”